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In reply to the discussion: "But They Are Dying." Hospice physicians like me can't usually offer patients the care they need. - Slate [View all]NCgayguy
(63 posts)Dear Euterpe Thelo,
First, allow me to apologize for taking so long to respond to you. I had to step away from this conversation because I really am in deep mourning over the loss of the love of my life, My Tommy. Yes, I will often refer to him as My Tommy and I honestly don't care if anyone is annoyed with me saying his name like that. He is My Tommy. I honestly cannot put into words how deeply we were in love and became our OWN FAMILY, from the very second our eyes met. No pun intended (because we are a gay couple) but our love story was like a fairy tale. We were so blessed for 41 years.
I did read your post. I am so, so sorry to hear what you went through. I understand all your frustrations, pain and hardships. Having dealt with everyone from Doctors, Hospitals, Insurance Companies, etc... since My Tommy's stroke in 2019, I became very knowledgeable how the health industry works in real life. I learned to do things I never knew I could. I was a STRONG ADVOCATE for my husband and I will be honest, I was a total A$$hole if anyone tried to ignore, harm him or dropped the ball. I was fortunate that I had some very caring health care workers that provided me the resources from the stroke days that gave me a solid foundation for finding information. I was always the caregiver for our family, so most of it came naturally.
Having read the many different experiences that some have posted here, it's obvious, America's health care industry is a roulette wheel. Trust me when I say, "My heart breaks." to know the truth of how worse things will become. It's inevitable.
I hope you will eventually find peace knowing you did all you could for your loved one. It's difficult I know, I'm not there yet either.
May You Be Healthy, Safe and Happy!
Reis
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