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EuterpeThelo

(20 posts)
44. Oh, I feel ya
Wed Apr 23, 2025, 10:17 PM
12 hrs ago

Hospice "care" we received for my poor, beloved dying mama in her last days was so abysmal that I fired the first company after four DAYS, after they were so rough bathing her that she cried and the ONE time I asked the nurse to empty the commode instead of me doing it, she walked through my house with a bag dripping shit across my entire hallway and kitchen and tossed it in the trash instead of just...y'know, flushing it down the toilet.

The second hospice couldn't figure out how to get her out of the ambulance back into our home upon her return from the emergency room due to the insurmountable barrier of THREE steps up into the front door (and despite that we'd told them there was ingress through the kitchen with ONE step or through my bedroom with NO steps). They left us sitting beside her on the gurney in my driveway for an hour, confused and shivering and comatose, until I called a supervisor and screamed bloody murder.

After that, they reneged on their commitments and the "nurse" they sent was so rude that, when I said I wasn't comfortable trying to suction out her lungs by myself (because I have literally zero medical training besides being a mom and bandaging skinned knees), she insisted my mom would have to go into a home. That was the ONE promise I made her, that she'd never have to go into a facility and would die in her own bedroom. The nurse stressed me out so badly that I fainted and they had to call paramedics to make sure *I* was OK!

My BFF had dropped everything and rushed to our side to help, and ended up yelling at the people on the phone at hospice that they needed to get over here and honor the promises they'd made to our family. After my mom passed, they had the NERVE to ask to come to her memorial and request a five-star Yelp review!!! (Spoiler alert: uh, NO, GFY!)

Recommendations

3 members have recommended this reply (displayed in chronological order):

Kicking. n/t ChazII Yesterday #1
Hospice care is one of the greatest services possible GulfofMexico 17 hrs ago #34
How sad the U.S. does not fund full hospice care. AloeVera Yesterday #2
It's even worse if you don't have any family support Random Boomer Yesterday #14
It shouldn't be that way. AloeVera Yesterday #20
That is the boat I am now in CountAllVotes 10 hrs ago #49
hospice benefits CountAllVotes Yesterday #3
That is bizarre - completely the opposite of my experience recently with hospice whopis01 Yesterday #6
Our health care "system" sucks. That was one sad example and I am sorry 😞 Evolve Dammit Yesterday #9
And it is not the fault of doctors and nurses. Just to clarify Evolve Dammit Yesterday #11
it really sucks CountAllVotes 23 hrs ago #23
I am so sorry for him to have to put up with all that, and then pass. And your frustration. Your anger is justified. Evolve Dammit 18 hrs ago #30
You must have gotten hold of one of the few hospice folks with no empathy. lark Yesterday #10
It has ruined my life! CountAllVotes 23 hrs ago #24
Must Rebl2 Yesterday #18
There was no "choice" CountAllVotes 23 hrs ago #25
This matches my experience with my uncle Farmer-Rick 14 hrs ago #41
Thanks for sharing CountAllVotes 10 hrs ago #48
Oh, I feel ya EuterpeThelo 12 hrs ago #44
Damn! CountAllVotes 10 hrs ago #47
I had a bad experience with hospice too when my husband was dying maptap22 3 hrs ago #53
I hope I have the courage to take assisted end of life if I ever get in a terminal cancer or 3Hotdogs Yesterday #4
I lived through this with my Daddy. I miss him. ❤️ littlemissmartypants Yesterday #5
Hospice was wonderful LittleGirl Yesterday #7
Hospice care should seriously reduce suffering. Prairie_Seagull Yesterday #8
Great health care system. Just wonderful. Mr. Mustard 2023 Yesterday #12
I don't understand why people don't use MAID. Jacson6 Yesterday #13
Where do you live? Random Boomer Yesterday #15
This message was self-deleted by its author Ruby the Liberal 15 hrs ago #36
Sorry - self deleted. Ruby the Liberal 15 hrs ago #38
Never Rebl2 Yesterday #19
Medical Assistance In Dying. It used to be called assisted suicide. n/t Jacson6 23 hrs ago #21
There are only a handful of states that allow Death with Dignity Ruby the Liberal 15 hrs ago #37
MAID is only available/authorized drmeow 15 hrs ago #39
And republicans don't give a shit.......... joshdawg Yesterday #16
I could not have survived my wife's cancer without the angels in hospice. bluescribbler Yesterday #17
My Husband just died in Hospice in our home in Jan this year NCgayguy 23 hrs ago #22
Oh, my heart EuterpeThelo 12 hrs ago #45
This message hit me like a thunderbolt... Moostache 22 hrs ago #26
Big hug to you SARose 18 hrs ago #32
we had a horrible experience with in patient hospice when my mom was dying. Native 22 hrs ago #27
Mine was awful too CountAllVotes 22 hrs ago #28
My Grandpere spent the last month or so of his life in a hospice. It was a gift to us all... TygrBright 18 hrs ago #29
My Mother-In-Law passed in a hospice hospital SARose 18 hrs ago #31
Tom apparently was lucky enough to get into a good facility. totodeinhere 17 hrs ago #33
just hope to die painlessly in my sleep CountAllVotes 10 hrs ago #50
The VA is a Federal Agency, but soldierant 17 hrs ago #35
I want to die in Italy JustAnotherGen 14 hrs ago #40
I can't imagine how my experience with Hospice could have been any better than it was. jackcrow2001 13 hrs ago #42
I'm so afraid of that time in my life Tickle 12 hrs ago #43
God Bless You blueinredLa 12 hrs ago #46
I took care of my husband at home. The hospice nurse came a few times to make sure everything was ok. TommieMommy 4 hrs ago #51
I had no idea there was such drastic variation in the quality of hospice services! ShazzieB 4 hrs ago #52
In patient hospice even if it is good costs a fortune and is not fully covered if at all Meowmee 3 hrs ago #54
If there is a trick to get the best care one can, Prairie_Seagull 1 hr ago #55
Latest Discussions»General Discussion»"But They Are Dying." Hos...»Reply #44