Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Moostache

(10,454 posts)
26. This message hit me like a thunderbolt...
Wed Apr 23, 2025, 12:16 PM
22 hrs ago

We are living this right now with my father.

He is 82 and in renal distress (severely reduced function) and cardiac failure (CHF). To top it off, he has advancing dementia and trouble undertsanding and answering questions. He is hospitalized right now for an acute fluid retention issue that we are hoping to treat without it advancing to pnuemonia.

The last 5 years have been an absolute horror show for my dad. He has lost his wife (my mother, to COVID-19 in Nov. 2020), then his independence (following a stroke in April 2021 and bladder cancer - survived and treated successfully in fall of 2021), then his home (in July 2022 when he never recovered sufficiently to live indpendently), then his mind started going (been going on for a long time now, but started accelerating in 2024 and is advancing relentlessly now). His journey is nearly the end - the clearing at the end of the path for those who know. He has earned his rest and I have always loved and honored him as my father and as a stellar example of what being a "man" meant for him and his family and me.

This long goodbye is hard, but we are among the very, very lucky in that he was successful enough to save money sufficient to have private care and a staff of caring people in a care facility to help us and dad through the process. It is a god send to us and something I will be eternally grateful for because as hard as this is...saying goodbye and going through the emotional roller coaster daily...it would be so very much harder without the help he has available. Everyone should be able to gain dignity in their waning days and the fact that we as a society don't take concrete steps to make it happen for the least of us is earned damnation.

My heart breaks every time dad says "I can't believe this is where I ended up" or "I don't understand how this happened to me", but I can take solace in the fact that he does not have additional burdens added to the already monumental ones he faces, and I remain thankful for the small mercies afforded to us.

Recommendations

7 members have recommended this reply (displayed in chronological order):

Kicking. n/t ChazII Yesterday #1
Hospice care is one of the greatest services possible GulfofMexico 17 hrs ago #34
How sad the U.S. does not fund full hospice care. AloeVera Yesterday #2
It's even worse if you don't have any family support Random Boomer Yesterday #14
It shouldn't be that way. AloeVera Yesterday #20
That is the boat I am now in CountAllVotes 10 hrs ago #49
hospice benefits CountAllVotes Yesterday #3
That is bizarre - completely the opposite of my experience recently with hospice whopis01 Yesterday #6
Our health care "system" sucks. That was one sad example and I am sorry 😞 Evolve Dammit Yesterday #9
And it is not the fault of doctors and nurses. Just to clarify Evolve Dammit Yesterday #11
it really sucks CountAllVotes 23 hrs ago #23
I am so sorry for him to have to put up with all that, and then pass. And your frustration. Your anger is justified. Evolve Dammit 18 hrs ago #30
You must have gotten hold of one of the few hospice folks with no empathy. lark Yesterday #10
It has ruined my life! CountAllVotes 23 hrs ago #24
Must Rebl2 Yesterday #18
There was no "choice" CountAllVotes 23 hrs ago #25
This matches my experience with my uncle Farmer-Rick 14 hrs ago #41
Thanks for sharing CountAllVotes 10 hrs ago #48
Oh, I feel ya EuterpeThelo 12 hrs ago #44
Damn! CountAllVotes 10 hrs ago #47
I had a bad experience with hospice too when my husband was dying maptap22 3 hrs ago #53
I hope I have the courage to take assisted end of life if I ever get in a terminal cancer or 3Hotdogs Yesterday #4
I lived through this with my Daddy. I miss him. ❤️ littlemissmartypants Yesterday #5
Hospice was wonderful LittleGirl Yesterday #7
Hospice care should seriously reduce suffering. Prairie_Seagull Yesterday #8
Great health care system. Just wonderful. Mr. Mustard 2023 Yesterday #12
I don't understand why people don't use MAID. Jacson6 Yesterday #13
Where do you live? Random Boomer Yesterday #15
This message was self-deleted by its author Ruby the Liberal 15 hrs ago #36
Sorry - self deleted. Ruby the Liberal 15 hrs ago #38
Never Rebl2 Yesterday #19
Medical Assistance In Dying. It used to be called assisted suicide. n/t Jacson6 23 hrs ago #21
There are only a handful of states that allow Death with Dignity Ruby the Liberal 15 hrs ago #37
MAID is only available/authorized drmeow 15 hrs ago #39
And republicans don't give a shit.......... joshdawg Yesterday #16
I could not have survived my wife's cancer without the angels in hospice. bluescribbler Yesterday #17
My Husband just died in Hospice in our home in Jan this year NCgayguy 23 hrs ago #22
Oh, my heart EuterpeThelo 12 hrs ago #45
This message hit me like a thunderbolt... Moostache 22 hrs ago #26
Big hug to you SARose 18 hrs ago #32
we had a horrible experience with in patient hospice when my mom was dying. Native 22 hrs ago #27
Mine was awful too CountAllVotes 22 hrs ago #28
My Grandpere spent the last month or so of his life in a hospice. It was a gift to us all... TygrBright 18 hrs ago #29
My Mother-In-Law passed in a hospice hospital SARose 18 hrs ago #31
Tom apparently was lucky enough to get into a good facility. totodeinhere 17 hrs ago #33
just hope to die painlessly in my sleep CountAllVotes 10 hrs ago #50
The VA is a Federal Agency, but soldierant 17 hrs ago #35
I want to die in Italy JustAnotherGen 14 hrs ago #40
I can't imagine how my experience with Hospice could have been any better than it was. jackcrow2001 13 hrs ago #42
I'm so afraid of that time in my life Tickle 12 hrs ago #43
God Bless You blueinredLa 12 hrs ago #46
I took care of my husband at home. The hospice nurse came a few times to make sure everything was ok. TommieMommy 4 hrs ago #51
I had no idea there was such drastic variation in the quality of hospice services! ShazzieB 4 hrs ago #52
In patient hospice even if it is good costs a fortune and is not fully covered if at all Meowmee 3 hrs ago #54
If there is a trick to get the best care one can, Prairie_Seagull 1 hr ago #55
Latest Discussions»General Discussion»"But They Are Dying." Hos...»Reply #26