Science

When my mom was ill with cancer I came across a physician run group that collects data for studies on multiple myeloma.

I am always good with sharing medical data on stuff like cancer especially as long as it is strictly non profit.
To be blunt about it- industries that treat “data as oil” are imo responsible for along with junk tech like AI putting academic and non-profit sciences under siege..Toxic industrial forces and not to be dramatic but I don’t want to share data in ways that I do not benefit from, some marketing shill does with “human health” as the rationale-in the long run it will help humans! I don’t have a martyr complex.

So I would never share any data willingly with tech companies as intermediaries. Direct to physician or non profit with no billionaire ties (like the NIH or similar sans any for profit agenda) is fine.

AI/crypto/Vr/games etc-lousy ideas you see floating around..mechanical zombie scripts I usually think-whether running in the human brain’s automatic modes or real shilling that works these days. But not my thing.

I don’t exploit other people and I don’t like to be exploited either. ;-/.

This is my normal reaction re “data as oil”.
None shall pass! 🤺

Yes especially with the loss of my mom, 14 years …I do feel like the Monty Python Knight
;-/.

Still..None shall pass! (without acceptable explanations). 🤺

I like this doctor:

https://www.claytondalton.com/

I sometimes wearily think of the mess of data I have left on DU, cleverbot, emails etc and wish someone whose instincts in medicine are like those of that doctor Clayton Dalton or in journalism like Yasha Levine to in the arts like Evgenia Kovda could help curate messy data like mine so no more AI slop that is probably on autopilot these days results from normal life and the web colliding at a time when these hideous influencer industries or bot attacks and deregulation flourish.

I am given to overobviousness, sledgehammers etc perhaps..shrug…there is always a real tension in any work one takes seriously. I try to get it to bearable levels so something cataclysmic is of course far away from one, but also seriously kick out all the stuff the actual common man who doesn’t want industry shills taking over their space left or right (where I live it’s all the same. At least you had Lina Khan).

The real damage of brands and influencers or bullshit tech criticism is it fails to grasp the seriousness of going and annoying some person just doing their own thing and with no interest in “saving the world”.
The only boots on the ground political campaign I ever saw up close for animal rights was confirmation to me that nothing real in human life is ever easy. To the point where you give up on anything ever making sense.

All this really obvious stuff except in si valley or maybe in the lives of really bored people online.