Chronic Health Conditions Discussion and Support

With medical things, we're still attached at the hip.

At 18, we were separating very nicely and she was taking over medical care, then PSC hit and we're back to intensive parenting. Mostly only for medical care - but due to restricted course offerings, my summer duties include crawling into bed beside her at 6:00 AM and pounding on her every 5 minutes until she shakes off enough liver fatigue to get up for her refresher chem class - then playing barista so she doesn't feel the need to stop at Starbucks (the former is necessary, the latter is either a gift or saving my pennies since the disease makes it impossible for her to be self supporting). PSC stinks - she slept 12 hours last night, and it still took her 35 minutes this morning to crawl out of bed. Too bad chem is only offered at 8 am.