Chronic Health Conditions Discussion and Support

When my son was first diagnosed in 1986 there were not many people in the medical field who knew about it let alone pronounce it correctly. I think it was 1990 when it was discovered that chromosome was the cause for NF1 and chromosome 22 was the cause for NF 2. There is more support now than in the past.

Facebook offerers several support groups which is one of the reasons I won't give up Facebook. Everyone who does have neurofibromatosis is able to pronounce it. Also, more primary care doctors know about this genetic disorder yet still many have to be educated. Support is extremely lacking in schools.