Chronic Health Conditions Discussion and Support

She was only hospitalized once for transfusions. It is pretty manageable. She was put on steroids (prednisone) that time. Her doctor told her to make sure she gets enough iron and to stay away from overdoing it with alcohol. She had one scare over the summer (when the prickly red dots and a few bruises appeared) but she was able to get it under control without another transfusion. The first time was very scary. Her body became basically one big bruise. The big concern is internal bleeding when your platelet count is low. Such as if you were to hit your head. Her cousin has it as well and only had one big flare, when she was a little girl.

Be well.

***My daughter is WannaBeGrumpy on here but she rarely posts anymore.****