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Chronic Health Conditions Discussion and Support

DeadLetterOffice

(1,352 posts)

3. I find social media...

Reply to MuseRider (Reply #2)

Fri Nov 20, 2015, 01:39 PM

Nov 2015

...to be a helpful way to link up with others who have rare disorders. It's not like there's a dozen folks in my rural area with EDS, so FB and Twitter help me feel less alone., and to get a sense of what's 'normal' for my illness.

A couple of my Twitter friends have gastroparesis, and it's definitely a challenge for them, but you're right - they are still living and finding joy where they can. After the diagnosis shock wears off, I hope you can do the same.

All the best wishes,
DLO

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Gastroparesis. After almost a year [View all] MuseRider Nov 2015 OP

Whiny is appropriate in reposne to chronic diagnoses. DeadLetterOffice Nov 2015 #1

Thank you and gentle hugs back to you, EDS is not an easy thing MuseRider Nov 2015 #2

I find social media... DeadLetterOffice Nov 2015 #3

I have dismotility on the other end -- my large intestine. I can Nay Nov 2015 #4

GI stuff can be tricky. MuseRider Nov 2015 #5

Good luck to you, too. And yes, corn ferments really fast -- IIRC, Nay Nov 2015 #6