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ProfessorGAC

(73,672 posts)
1. Sorry, No
Fri Jan 20, 2012, 12:11 PM
Jan 2012

On Betaseron since 1994 (or maybe early 1995). I've tried nothing else. I've got the cerebellar form of the illness so i don't have true relapses or remittances. The symptoms are constant background to me.

Blind in one eye, burning sensation from just above the knee to the bottom of the feet in both legs, minor spacticity mostly in the calves and muscles around the hips.

I know this isn't a popular view here, but i know people who work in R&D at Big Pharma and those are REALLY diligent and careful people. The FDA may get pressured into releasing things on occasion but not one person i've ever met in that industry didn't care about the negative aspects of the drug.

Unless your neuro is on the take from whatever company is making Ampyra, he's taken an oath to do what's best for you.

So, i'd suggest doing it. Now, the money thing is a whole different issue, but fear of it seems unproductive. If MS takes you a piece at a time, is that really better than the potential risk of side-effects? Obviously i say no.

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