Chronic Health Conditions Discussion and Support

alfredo

(60,226 posts) Mon Aug 14, 2023, 05:15 PM Aug 2023

Anyone have normal pressure hydrocephalus? Good news!

Last edited Thu Sep 28, 2023, 03:56 PM - Edit history (1)

It’s a real pain. My sister has it too.

I have to hold on to a handrail when negotiating stairs.

** I have a consult with neurology coming soon. **

Not looking forward to brain surgery, but I endured cancer treatment, I can handle this

16 replies

= new reply since forum marked as read

Highlight:

Anyone have normal pressure hydrocephalus? ** Good news! ** (Original Post) alfredo Aug 2023 OP

YES, and it is annoying. elleng Aug 2023 #1

Just as long as I get my balance back alfredo Aug 2023 #2

Waiting and waiting for my balance. elleng Aug 2023 #3

I think my mom had the same issue alfredo Aug 2023 #4

I suspect I've had it for much of my life, elleng Aug 2023 #5

Bending forward, looking up and turning my head can put me on the floor alfredo Aug 2023 #7

Oh GEE! elleng Aug 2023 #8

Oh, it's loads of fun. alfredo Aug 2023 #9

I'm going to see about a shunt. Hope you see improvement alfredo Sep 2023 #10

Thanks, I hope to see improvement too. Not much, at the moment. elleng Sep 2023 #11

It really messes with my sleep. If I turn my head the wrong way, alfredo Sep 2023 #13

That's NOT good. elleng Sep 2023 #15

I have the VA and they will refer me if needed alfredo Sep 2023 #16

Mine became bad after radiation therapy. alfredo Aug 2023 #6

Radiation would/could do it, I guess. elleng Sep 2023 #12

It beat cancer, but left me with long lasting side effects, alfredo Sep 2023 #14

elleng

(140,904 posts)

1. YES, and it is annoying.

Reply to alfredo (Original post)

Mon Aug 14, 2023, 05:18 PM

Aug 2023

Had surgery 1 month ago, fluid's draining but slowly. Very frustrating.

HI. Alfredo!!!

My 'saga' in Health.

alfredo

(60,226 posts)

2. Just as long as I get my balance back

Reply to elleng (Reply #1)

Tue Aug 15, 2023, 03:04 PM

Aug 2023

My sister had the surgery, and did ok.

elleng

(140,904 posts)

3. Waiting and waiting for my balance.

Reply to alfredo (Reply #2)

Tue Aug 15, 2023, 03:28 PM

Aug 2023

Glad your sister did OK.

alfredo

(60,226 posts)

4. I think my mom had the same issue

Reply to elleng (Reply #3)

Tue Aug 15, 2023, 08:02 PM

Aug 2023

elleng

(140,904 posts)

5. I suspect I've had it for much of my life,

Reply to alfredo (Reply #4)

Tue Aug 15, 2023, 08:04 PM

Aug 2023

but it's only become a burden within the past year. Actually diagnosed 15 years ago.

alfredo

(60,226 posts)

7. Bending forward, looking up and turning my head can put me on the floor

Reply to elleng (Reply #5)

Wed Aug 16, 2023, 12:21 AM

Aug 2023

elleng

(140,904 posts)

8. Oh GEE!

Reply to alfredo (Reply #7)

Wed Aug 16, 2023, 12:23 AM

Aug 2023

I sure won't try THAT!

alfredo

(60,226 posts)

9. Oh, it's loads of fun.

Reply to elleng (Reply #8)

Wed Aug 16, 2023, 08:23 AM

Aug 2023

alfredo

(60,226 posts)

10. I'm going to see about a shunt. Hope you see improvement

Reply to elleng (Reply #3)

Sun Sep 24, 2023, 03:09 PM

Sep 2023

Is the shunt draining properly?
I fell last night from my magnetic feet.

Till then I’ll keep shuffling

?si=iFiupB-rGgWuS4SW

elleng

(140,904 posts)

11. Thanks, I hope to see improvement too. Not much, at the moment.

Reply to alfredo (Reply #10)

Sun Sep 24, 2023, 03:21 PM

Sep 2023

ASSUMING it's draining properly, and avoiding 'scheduled' doc/surgeon appointment for this coming week (didn't know it was scheduled!) as going out of town for grand daughter's 7th birthday celebration.

Daughter told me may take 6 months.

alfredo

(60,226 posts)

13. It really messes with my sleep. If I turn my head the wrong way,

Reply to elleng (Reply #11)

Sun Sep 24, 2023, 11:28 PM

Sep 2023

I get dizzy with a touch of nausea. I can’t sleep on my side without risking dizzy spells

elleng

(140,904 posts)

15. That's NOT good.

Reply to alfredo (Reply #13)

Sun Sep 24, 2023, 11:36 PM

Sep 2023

Have reliable docs? My neurologist @ Johns Hopkins specializes in hydrocephalus.

alfredo

(60,226 posts)

16. I have the VA and they will refer me if needed

Reply to elleng (Reply #15)

Mon Sep 25, 2023, 10:13 AM

Sep 2023

alfredo

(60,226 posts)

6. Mine became bad after radiation therapy.

Reply to alfredo (Original post)

Tue Aug 15, 2023, 08:41 PM

Aug 2023

They told me I had some brain damage from radiation and chemo

I’m alive and cancer free. As we used to say “ if you want to play, you gotta pay.”
Ain’t nuttin free.

elleng

(140,904 posts)

12. Radiation would/could do it, I guess.

Reply to alfredo (Reply #6)

Sun Sep 24, 2023, 03:22 PM

Sep 2023

Cured friend, with prostate cancer.

alfredo

(60,226 posts)

14. It beat cancer, but left me with long lasting side effects,

Reply to elleng (Reply #12)

Sun Sep 24, 2023, 11:30 PM

Sep 2023

Reply to this discussion