Sending good vibes. Wishing your son to get relief from pain and fear of hospitals. Wishing you peace and comfort.

His fear of hospitals is because of two really extensive surgeries that left him pretty scarred due to tumor growth on catoid artery. The Second surgery was 16 hours long.

Hospice has been here and they are wonderful.

What a harrowing path you are going

Acc cancer travels along nerve endings so the pain is unbearable

I hope Hospice can help your son.

May his journey be graced with peace and comfort. I cannot imagine what you are feeling. Sending you love.

And the best for your son as well.

Wishing you all strength and relief of pain for your son. And, of course, sending all those powerful DU vibes that we can muster...

Yes they are truly wonderful.

I send you my best and wishes for peace.

I can't even imagine what you are going through. All my best wishes to you.

I am in tears for you. Hug your son and be close. Let him know you love him.

hug:

They will take good care of your son.
And hospice does not let their patients suffer.
They will get control of his pain.

The hospice nurses are the best.
They are totally focused on patient comfort, well being, quality of life.

The Hospice nurses come in, take charge and get it all sorted out.
Just like yours did.

Your loved one and family are in good hands.

I am happy to hear it worked out so well.

Is he getting pain relief?

Let the nurse know if your son is still in severe pain.

He is so relieved. Someone is actually listening to him. Pain docs are good but when it comes to cancer pain there are a lot of laws that limit what they can prescribe and how much. He has been on oxy for 10 years due to three recurrence of tumor growth. His pain doc thought he needed to lower his does during his last remission. When he had his third recurrence he wouldn't increase it cause he thought he was doing ok. ACC cells are microscopic and slow growing so it can take months before recurrence shows up on scan not the case for increased pain.
His hospice nurse explained that long time use like he had leads to tolerance and
uncontrolled pain. This leads to self
medicating in many paitents.
He is so relieved that someone takes his pain seriously and not treat him like he is just seeking drugs.

Thank God.
Sleep is so important.
And being pain free.
This is one of the hallmarks of the hospice nurse.
They will not let patients suffer.

And they are holistic, assembling a specialized team to take care of the patient

Yes regular docs just don't want to give the right meds or dosages that hospice patients need.
Yes long term use decreases effectiveness and more meds are needed to do the job.

When a patient is terminal we should not worry about drug addiction issues or drug seeking.
It no longer matters. It is critical to get the patient the pain relief he needs.
This is the difference between a regular doc and the hospice docs and nurses.

It is great that your son is doing well enough to get a wheel chair so he can get around
in a safe way. And that he has crew of people coming to give him specialized services.

So he is doing well and will do better when the team is in place helping him.
Everyone is great, the health aides, the chaplain, social worker, etc.

This is all good news.

Prayer is my practice. I'm so sorry that this is happening.

Sending you love and a great big hug!