... y'all are in my prayers and thoughts.

There had to be a better way of letting her know.

We're basically waiting to hear about the bones. She broke her rib apparently from coughing and the test results are claiming there was evidence of a lesion on the bone at the break site. So metastasis to the bones from the lungs is classified as Stage 4 and incurable. But we're trying to remain hopeful. It's in both lungs and is in lymph nodes.

This was out of the blue for her. A couple weeks agoshe's totally fine and all the sudden she might have a death sentence.

Last edited Mon Apr 21, 2025, 04:42 PM - Edit history (1)

for the cold way in which she was informed and the potential diagnosis. Hugs to you all.

❤️❤️❤️

The CURES act which took effect last year requires that test results be available to the patient as soon as they are ready. In most cases that means a patient will get them before the doctors have a chance to review them.

https://documents.cap.org/documents/sharing-test-results-cures-act-fact-sheet.pdf

She was called first thing this morning and is going in to meet with doctors this afternoon. So it's not like they didn't follow up right away.

Was just a tough way to hear about it and then all you have is Google to figure out what might be going on.

She had some of her questions answered on the phone this moring, and will learn a lot more today. But it's bad news that they just have to confirm it sounds like. Just stinks overall. I hate cancer. Been just a brutal year for the people around me.

Treatments that couldn’t even be imagined a few years ago. My niece experienced one of those and is healthy today. Even five years ago she would have died. Don’t give up hope.

Once the MRI results were published and I saw the 'grade' the radiologist had given the lesion they found, and then googling all the medical term stuff regarding the 'grade' I was convinced that the biopsy would show cancer. So in the weeks between the MRI and the biopsy, I was researching prostate cancer extensively, researching the various treatments, etc. Then after the biopsy I had to wait about a week to meet with the urologist to get the biopsy results and found out that the lesion was not cancer which was a great relief.

In retrospect, I wish when I had met with the urologist to review the MRI results, I think he should have just said, the MRI found a lesion so next steps is to schedule a biopsy and based on the results of the biopsy we'll determine next steps. I would have been fine with that without having to see the entire MRI result and analysis by the radiologist.

I had an MRI of my prostate followed a few weeks later by a biopsy. Neither test result was visible on MyChart until after I had met with the Urologist in person.

Best of luck to your MIL.

Advanced Metastic Lung Cancer is what is in her chart several times, but the doctor said they won't have a full diagnosis until the PET scan in about 10 days. She's lost 22 pounds in the last few weeks and is not a big person.

On top of that, my mother is very near the end too and is suffering terribly.