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JMCKUSICK

(4,601 posts)
Sat Nov 8, 2025, 06:29 PM Nov 8

My Rory update for the day,

They found a new brain tumor today that's pressuring his optic nerve, and as uneducated as I am with specifics, I know things are going much faster than any of us is ready for.
His daughter Anissa went to visit him and was pleased to be there while several doctors came in and out so she has a much more complete picture of his overall condition.
While they won't treat the rest of his cancer because Rory is terminal, they make exceptions in the case of brain tumors in situations like this because of how aggressive this cancer is and it is the one place where radiation can extend the quality of his life.
The twisted logic of all this is we now have two independent witnesses of her refusal to give him pain medication, as she repeatedly told both the oncologist and her boss that all he needs is Tylenol.
I did something I'm not proud of when I asked to speak to her so I could ask a question with ulterior motives:
I've attended his church while up here and they have a translation device that they let me use last Sunday, and I asked if she could arrange for me to pick it up from her at church in the morning so I could listen in English and she said yes.
The only real goal was to make sure she's going to Church tomorrow so I can go see Rory and spend the better part of the day with him.
She has been responsible for his cancellation of the last three days of activity, including not wanting me at the hospital.
Rory told his daughter today in no uncertain terms that he does want to see me.
I've known his wife for all of the time I've known him, and I'm struggling so much with my anger and pain over what she's doing.
I will do whatever is in my power to see that he doesn't spend another single day in her care of it's the last thing I do.
Fucking one Tylenol two times a day with one 5mg oxycodone tossed in for the "real pain".
She cannot be allowed to provide the final decision for a single act on his behalf again. Please forgive me for my anger, I have felt this feeling so many times before and I still don't trust myself enough to know it's truth even though there have been zero exceptions on my entire life experiencing abuse..
We are so programmed to mistrust our own feelings whether it's knowing my wife was having an affair, to knowing my parents didn't want me to being s xually groomed and abused by people that were supposed to be on my side, and still, in spite of all the evidence that we know instinctually, we offer the perpetrator every fucking benefit of the doubt.
Im going to the hospital tomorrow morning at 9 Am, and I'm spending the day with him. Period. Full Stop. When she shows up, if she gives me one ounce of trouble, I will likely say things that should have been said a year ago.
I have to stop for the moment and go breathe and pray, after all, the only real goal here is to be with Rory and help him find his way. The rest can and must be done, but his place of grace with God, his comfort in his physical as well as spiritual being is paramount.
The work to protect him will happen behind the scenes.
Thank you all for listening, and for your kind and supportive words, wishes and prayers, you all are a divine source of my grace.
Thank you,
Love, John

4 replies = new reply since forum marked as read
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My Rory update for the day, (Original Post) JMCKUSICK Nov 8 OP
My brother died a year ago last August from an inoperable brain tumor. 58Sunliner Nov 8 #1
Thank you so much for your encouraging JMCKUSICK Nov 8 #2
You are welcome. It is uncharted territory for most of us, and uncomfortable. 58Sunliner Nov 9 #4
Kick JMCKUSICK Nov 8 #3

58Sunliner

(6,246 posts)
1. My brother died a year ago last August from an inoperable brain tumor.
Sat Nov 8, 2025, 07:12 PM
Nov 8

The wife, who I know he did not divorce out of laziness, was in charge of his care. Only when I texted him, asking him jokingly if he was still alive, did I get any notice that he was dying with brain cancer. Really wanted to give her a piece of my mind. At that point my brother was non-verbal. I flew out to LA to see him and did not bother seeing the wife.
Feel free to fight for his pain meds and his dignity. You will not regret it. What should be said, should be said.

JMCKUSICK

(4,601 posts)
2. Thank you so much for your encouraging
Sat Nov 8, 2025, 07:16 PM
Nov 8

Words 58Sunliner, I always have to stop myself because I really don't know what's right here even though it seems obvious.
Thank you

58Sunliner

(6,246 posts)
4. You are welcome. It is uncharted territory for most of us, and uncomfortable.
Sun Nov 9, 2025, 09:05 AM
Nov 9

Normally the pt would advocate for himself, but brain tumors cause deficits in function/logic and maybe the doctor needs to advocate better in this circumstance. You might gently remind him.

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