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LuckyCharms

(21,236 posts)
Thu Oct 16, 2025, 08:55 PM Oct 16

What a day

Today is a special day, so we ordered the best Italian take out in town for lunch.

I've been having serious back problems. Pain that makes me cry and gives me thoughts of suicide (no worries...but that's how this pain is). I made the mistake of sitting on a hard dining room chair to eat the food, but when I tried to get up after the meal, it was complete bedlam. Screaming and tears.

What I need is a steroid injected into a hand vein, and then have that followed up with a Prednisone one week taper.

I messaged my primary care in the portal. Got a call back from her nurse. "We don't do any injectable steroids in the office anymore. They might do them at a walk-in, but call first, just to make sure". I called the walk-in. Got the elevator music on hold. After 15 minutes, I gave up and hung up the phone.

Prior to today, I had not showered in two days, and I was getting a little funky and rank. We have two bathrooms, but the bathroom I normally shower in upstairs only has the suction cup grab bars. And the shower has glass doors, and I was afraid of falling through the doors, so that's why I hadn't showered in two days.

I never use the "fancy", recently remodeled bathroom downstairs. My wife does. I don't even know how to work the shower...there's multiple knobs and levers. But this bathroom has firm grab bars. I couldn't stand myself any longer, so I asked my spouse to show me how to work the shower. She started it up for me, and I climbed in. I was so unsteady that I asked my wife to sit on the toilet and watch me shower and try to catch me if I fell. So she did that, but I had a brutally hard time washing myself, and I was hanging onto those grab bars for dear life. I couldn't wash my feet, so my wife washed them for me.

Pain was worse after the shower. I broke down in tears of frustration.

I finally bit the bullet and took an oxycodone. I hate opiates, but it had to be done. So now I'm sitting here higher than a kite, with a warmed up bed buddy on my lower back.

The medical SYSTEM (not the professionals in this field) is so frustrating. Can't get my doctor to inject the steroids. Can't reach a walk-in on the phone to even enquire about that possibility.

I get this bad about once a year and Prednisone usually knocks it out in a week or so. I KNOW what I need, but it looks like the only way I am going to get it is to go to the ER. This sucks, because they probably will refuse to sedate me before a CT scan, and I absolutely cannot lay down flat. I would pass out from the pain.

Anyway, that's why I have not posted in the past few days.

It's very discouraging when you have to ponder how the fuck you are going to get medical treatment with something that you KNOW you need, without having to jump through hoops.

My wife is begging me to let her drive me to the ER, and I can't make her understand that I won't be able to get into the car. So that means a $1,500 ambulance ride when I can't take it anymore.

This shit is so fucking wretched that I can't put it into words to convey how bad this pain is.

My fellow DUers with spinal pain can probably relate to this though.

I wanted to go to No Kings on Saturday, but that's hopeless.

56 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
What a day (Original Post) LuckyCharms Oct 16 OP
Sending you kind thoughts and hope you get relief asap ❤️ MLAA Oct 16 #1
Thanks, MLAA. LuckyCharms Oct 16 #2
My husband use to say that he was a burden and I said I was just protecting my investment because I wanted him MLAA Oct 16 #3
Your husband has/had... LuckyCharms Oct 16 #4
I understand your frustration. I feel so badly for you and hope you get some relief soon. LoisB Oct 16 #5
Thanks, Lois... LuckyCharms Oct 16 #6
Thank you. Yes, but not as debilitating as yours. LoisB Oct 16 #13
Oh, LuckyCharms. I am so sorry this is happening to you. debm55 Oct 16 #7
Thanks Deb... LuckyCharms Oct 16 #8
I'm so sorry for your pain. Trueblue Texan Oct 16 #9
Thanks a lot, Texan. LuckyCharms Oct 16 #11
Perhaps you need a referral to a pain clinic. Lars39 Oct 16 #10
I got referred to one not too long ago... LuckyCharms Oct 16 #12
Good grief! Lars39 Oct 16 #14
Do you have any "Medical Transport" companies around you? Marie Marie Oct 16 #15
Thanks a lot for this, Marie Marie. LuckyCharms Oct 18 #54
back pain sucks. i'm officially 'fix 1 thing, something else breaks' yrs old now. mopinko Oct 16 #16
Chronic pain is a pain in the ass Bayard Oct 16 #17
Yes... LuckyCharms Oct 16 #18
Has your doctor suggested an epidural? Bayard Oct 17 #20
"" AllaN01Bear Oct 17 #19
Have you tried THC gummy or edibles? Emile Oct 17 #21
This message was self-deleted by its author Fla Dem Oct 17 #22
You might want to check with your primary care doc to see if their practice does home visits. Fla Dem Oct 17 #23
Dang, Lucky, you've already had more than your share of pain. quaint Oct 17 #24
Sorry to read about your suffering LuckyCharms CountAllVotes Oct 17 #25
I hope you get your meds back soon! LuckyCharms Oct 18 #49
I had this for many months ballardgirl Oct 17 #26
At fhe hospital now. Prednisone and Dilaudid. LuckyCharms Oct 17 #27
Well glad you finally got some medical attention, Fla Dem Oct 17 #28
Yikes! Your abdominal surgery sounds like no fun! LuckyCharms Oct 17 #30
Hope you got a good night sleep!!!! Fla Dem Oct 18 #45
Thanks, Fla Dem LuckyCharms Oct 18 #48
I hope that you had nice special day, Lucky Niagara Oct 17 #29
Worst birthday ever, Niagara. LuckyCharms Oct 17 #31
Awww, I'm sorry to read that Niagara Oct 17 #36
I forgot to mention my vacation is almost over Niagara Oct 17 #38
Did you have a nice time? LuckyCharms Oct 17 #39
It's a nice time but never enough time, Lucky Niagara Oct 18 #46
I understand, Niagara. LuckyCharms Oct 18 #53
"No Kings" is in your heart, so you're there. Harker Oct 17 #32
Yes, we will all be OK, Harker. LuckyCharms Oct 17 #33
Thanks, Lucky! Harker Oct 17 #34
. LuckyCharms Oct 17 #35
Yep, I'm ready to be fleeced. Harker Oct 17 #40
Wow Harker! LuckyCharms Oct 17 #42
Dammit... right behind you, old man. Harker Oct 17 #43
I hope it's your last one too, Harker. LuckyCharms Oct 17 #44
I'm also out to pasture, Harker Niagara Oct 17 #37
Niagara... let's graze for strength! Harker Oct 17 #41
We're both a bit sheepish, Harker Niagara Oct 18 #47
I am two steps behind you in the pain department onethatcares Oct 18 #50
Thank you, and I wish you good health. LuckyCharms Oct 18 #51
Oh LC, so sorry, may the universe relieve your pain soon 💚 Clouds Passing Oct 18 #52
Thanks so much, Clouds Passing. LuckyCharms Oct 18 #55
You are always okay, but pain-free would be much better 😃 Clouds Passing Oct 18 #56

LuckyCharms

(21,236 posts)
2. Thanks, MLAA.
Thu Oct 16, 2025, 09:04 PM
Oct 16

I feel like a goddamn burden, and I don't like people waiting on me.

I hope when it's my time, I will go suddenly, because I'll never make it in a nursing home.

MLAA

(19,614 posts)
3. My husband use to say that he was a burden and I said I was just protecting my investment because I wanted him
Thu Oct 16, 2025, 09:07 PM
Oct 16

around for a long, long time because it’s easier to kept a great husband than to find one. 🙂

LuckyCharms

(21,236 posts)
4. Your husband has/had...
Thu Oct 16, 2025, 09:12 PM
Oct 16

a good person for a spouse.

I'm so used to being independent, and when I can't be, it makes me feel useless.

A joke:

How is pain similar to a drum solo at a rock concert?

You know it's coming, and there's not a goddamn thing you can do about it!

LuckyCharms

(21,236 posts)
8. Thanks Deb...
Thu Oct 16, 2025, 09:27 PM
Oct 16

I'm just whining.

Can't go to sleep and I didn't know what else to post, so...



Trueblue Texan

(4,023 posts)
9. I'm so sorry for your pain.
Thu Oct 16, 2025, 09:31 PM
Oct 16

I hope you have a shower chair or bench. When I got the flu earlier in the year, I didn't shower for days because I was so weak I was afraid I would fall. I (am an OT assistant therapist) and I thought shower chairs were at least 10 years out in my future. Sudden illness can take us down in a heartbeat. Speedy healing to you!

Lars39

(26,468 posts)
10. Perhaps you need a referral to a pain clinic.
Thu Oct 16, 2025, 09:32 PM
Oct 16

Those restaurant chairs can be brutal.
I finally broke down and accepted the referral. They have methods to keep you functional and out of pain that I didn’t even know existed.

LuckyCharms

(21,236 posts)
12. I got referred to one not too long ago...
Thu Oct 16, 2025, 09:37 PM
Oct 16

The person at the front desk didn't check me in correctly.

A FOUR HOUR wait in the waiting room.

I was quietly fuming when the doctor finally called me back there...

He said he was going to pursue approval from my insurance for a PET scan.

I never heard back.

Lars39

(26,468 posts)
14. Good grief!
Thu Oct 16, 2025, 10:24 PM
Oct 16

Sounds like amateur day at the front desk. Maybe call ‘em and ask to speak to his nurse?

Marie Marie

(10,745 posts)
15. Do you have any "Medical Transport" companies around you?
Thu Oct 16, 2025, 10:35 PM
Oct 16

They can handle people who are barely mobile but don't require life saving equipment or services so they should be cheaper. We used them for my MIL when she could not get in or out of a car. Sorry that you are in so much pain - wishing you some speedy relief.

mopinko

(73,196 posts)
16. back pain sucks. i'm officially 'fix 1 thing, something else breaks' yrs old now.
Thu Oct 16, 2025, 10:35 PM
Oct 16

after a yr and 1/2 of gi crap, including 2 major surgeries, i was all squared away. happy to get back to my yoga practice. a couple wks in, bamm. low back pain.
now i’m crawling through the medical industrial complex, again, and yeah, it can make u crazy. almost a month to see an ortho, now waiting to get a shot scheduled, but the scheduler doesnt answer her phone. straight to vm. she called me, left a vm, and i’ve called back 3 times. still waiting.
the pain isnt all that awful, but it sure is depressing. i have enough trouble ungluing from a screen to accomplish something, anything. but knowing i’ll b in pain in minutes, it’s just fucking exhausting.
was rly hoping to get that shot this wk, so i cd go protest, but no…

Bayard

(27,850 posts)
17. Chronic pain is a pain in the ass
Thu Oct 16, 2025, 10:51 PM
Oct 16

Do you have an actual diagnosis?

I get steroid injections from my orthopedic surgeon. Can you get a referral from your GP? Sometimes you can get in pretty quickly if you cry....

I agree with Marie Marie in looking for a medical transport company. My sister was a double amputee, and that's who she used for her many appointments.

Hope life gets better for you very soon.

LuckyCharms

(21,236 posts)
18. Yes...
Thu Oct 16, 2025, 11:05 PM
Oct 16

Degenerative disc disease, thoracic foraminal stenosis, lumbar foraminal stenosis, bulging discs (both lumbar and thoracic), arthritis in hips.

Thanks, Bayard

AllaN01Bear

(28,067 posts)
19. ""
Fri Oct 17, 2025, 12:07 AM
Oct 17
if u can stand it get a shower chair . if u can find lyoons cloubs they might be able to help u.spinal fursion here @ age 16. scolliosis of the spine . woould have been hunch back in 6 months.abropt weather changes drive me crazy r. ive been seeing a delightful bone snapper dr for the lastt 10 years and has helped me. fitness too.

Response to Emile (Reply #21)

Fla Dem

(27,319 posts)
23. You might want to check with your primary care doc to see if their practice does home visits.
Fri Oct 17, 2025, 08:27 AM
Oct 17

If not they may know of a Home Visit Service in your area.

My Health insurance provider sends a doctor to my house once every year just for a annual check-up.

Google : House call doctors near me.

quaint

(4,394 posts)
24. Dang, Lucky, you've already had more than your share of pain.
Fri Oct 17, 2025, 08:31 AM
Oct 17

Your wife is a goddess.
I feel guilty living an almost painless life (except when I do stupid things).

CountAllVotes

(22,034 posts)
25. Sorry to read about your suffering LuckyCharms
Fri Oct 17, 2025, 11:38 AM
Oct 17

I hear you, believe me.

I was in bad shape and had one pain pill left. I took it.

I became so upset that I called the pharmacist up again and told him I really need to get my old medication back. Fortunately, he's been told he has to cut people out that are getting the stuff they've been giving me recently which I truly HATE.

I may be getting my old pain medication back soon I hope.

I know how difficult it is to live in chronic pain.

Take care LuckyCharms!



LuckyCharms

(21,236 posts)
49. I hope you get your meds back soon!
Sat Oct 18, 2025, 09:23 AM
Oct 18

When you need them, you need them.

This is the kind of pain that just laughs at Advil or Tylenol.

Good health to you, CountAllVotes.

ballardgirl

(174 posts)
26. I had this for many months
Fri Oct 17, 2025, 01:58 PM
Oct 17

and finally went through an MRI or some such thing, which cleared me for the shots. Those did nothing for me so I saw a spinal surgeon. He was able to diagnose spinal arthritis using just an x-ray. Anyhoo, I always swore I would never have back surgery but they were able to scrape the bone that was pressing on the sciatic nerve. The surgeon said it often does not work, but it did for me!!! Doing gentle yoga for lower back keeps me in shape, and I have not had a flare-up in over 10 years.
I hope they can get you fixed up. That pain is the worst.

LuckyCharms

(21,236 posts)
27. At fhe hospital now. Prednisone and Dilaudid.
Fri Oct 17, 2025, 04:47 PM
Oct 17

Don't know if I spelled that right.

Awaiting CT Scan.

Fla Dem

(27,319 posts)
28. Well glad you finally got some medical attention,
Fri Oct 17, 2025, 07:17 PM
Oct 17

Know how scary it can be when you're in substantial pain and have to have immediate medical care.

Three times over a 50 year period I've had emergency abdominal surgery . My last one was 10 years ago. No not appendicitis or child birth. Although the appendix was removed because they were in the abdomen anyway so why not!

Hope all goes well moving forward. Got a lot of folks rooting for you.

LuckyCharms

(21,236 posts)
30. Yikes! Your abdominal surgery sounds like no fun!
Fri Oct 17, 2025, 08:39 PM
Oct 17

Just got home.

Same diagnosis as every time I go to the ER for this.

Stenosis, bulging discs, degenerative disc disease.

They started with a dose of Prednisone orally. They then tried plain Tylenol via IV (I can't take NSAIDS like Advil because of kidney disease). That didn't touch it, so they gave me first dose of Dilaudid before they wheeled me to the CT scan. I still could not get up on the CT table. My nurse came in and gave me a second dose of Dilaudid via IV while I was standing up next to the CT table. That almost dropped me to the floor, but the pain was still there...it took two women and one man to get me on the table.

ER Doc was a young guy. Told me he sees about 15 patients a day for back pain.

He said there was nothing they could do there, except to give me pain killers. He prescribed some more oxy, and said to go to physical therapy. He also gave me some exercises to do. He mildly scolded me for waiting so long before starting the Oxy. He said that once the pain gets out ahead of you, it's very hard to bring it back to baseline. He told me that my records do not indicate any history of drug seeking, so don't be afraid to start the Oxy next time when the pain first begins.

Dilaudid is wearing off and pain is coming back, so I'll take an Oxy before bed.

No more abdominal surgeries for you! You've met your quota already!

Fla Dem

(27,319 posts)
45. Hope you got a good night sleep!!!!
Sat Oct 18, 2025, 08:11 AM
Oct 18

I agree! Relatively healthy otherwise. But I've had enough!

Take care LC. Hope all goes well for you.

LuckyCharms

(21,236 posts)
48. Thanks, Fla Dem
Sat Oct 18, 2025, 08:54 AM
Oct 18

They shot a 55 gallon drum of Dilaudid in me, and the Prednisone shot my glucose up to around 500 (I don't know the exact number because the Dexcom just says "high" when it gets over 400, but the graph shows somewhere around 500). So I didn't get any sleep at all, and everything is starting to wear off now and I'm back to being miserable.

Was getting a little nervous with such a high glucose reading, but it is back down to the 300s now and hopefully will be back to normal (100s) by day's end. I had to triple my amount of normal insulin, and my glucose is WAY too high still. Prednisone causes havoc for a type one diabetic.

I was diagnosed with degenerative disk disease when I was in my 30's, but it was never a big deal. I was still working out then, going to the gym. I never thought this would be the thing that kills me, but now I'm not so sure.

Thank you for your kind words.

Niagara

(11,154 posts)
29. I hope that you had nice special day, Lucky
Fri Oct 17, 2025, 08:28 PM
Oct 17

I also hope that the back pain resolves sooner than later.

Harker

(17,152 posts)
32. "No Kings" is in your heart, so you're there.
Fri Oct 17, 2025, 08:54 PM
Oct 17

I'm missing it to go to Rhinebeck with my wife for the sheep and wool show

I have faith in our friends to supply the physical presence. I made the first and I'll make the next one, and I know you'll be there if you can.

We'll be okay, Lucky.

LuckyCharms

(21,236 posts)
33. Yes, we will all be OK, Harker.
Fri Oct 17, 2025, 08:56 PM
Oct 17

I used to love going to the NYS State Fair and watch the sheep shearing.

Have fun in Rhinebeck!

Harker

(17,152 posts)
34. Thanks, Lucky!
Fri Oct 17, 2025, 09:01 PM
Oct 17

My wife's an avid knitter, and this is the winter I get started. I'll continue my anti-fascist activities on Monday.

Baaaaaa!



Harker

(17,152 posts)
40. Yep, I'm ready to be fleeced.
Fri Oct 17, 2025, 09:27 PM
Oct 17

We're 66, you and I... you're in a tough stretch, and I just had my fourth hernia surgery, so I'm healing up, too, but we're not out of it yet.

We can rest up, heal up, and come back fresh and ready just a little further down the line, my friend.

There's room for us to be in the rear echelon for a while, and I can tell you don't like it any more than I do . I think you'd buck up a bit if you knew how inspirational you are to a lot of us. You'd know you're in the fight.

LuckyCharms

(21,236 posts)
42. Wow Harker!
Fri Oct 17, 2025, 09:30 PM
Oct 17

Heal up quickly! I really hope you do!

I turned 67 yesterday.

Hang tough, and I appreciate your kind words.

Harker

(17,152 posts)
43. Dammit... right behind you, old man.
Fri Oct 17, 2025, 09:45 PM
Oct 17

This was my first (and last, I hope) umbilical hernia. First with the surgeon employing a da Vinci robot. Better a constellation of several small incisions than the seven inch gash.

You get better, too, Lucky. We have things to do, and good ti.es ahead.

LuckyCharms

(21,236 posts)
44. I hope it's your last one too, Harker.
Fri Oct 17, 2025, 09:48 PM
Oct 17

I have a few hernias, but they have not required surgery as of yet.

I hope the robot surgery with the smaller incisions means that you are not in too much pain.

onethatcares

(16,940 posts)
50. I am two steps behind you in the pain department
Sat Oct 18, 2025, 09:38 AM
Oct 18

and I look like a bent over gnome when I walk. I couldn't drive myself to NO KINGS so I'll have to be there in spirit.

Good luck on the back pain.

LuckyCharms

(21,236 posts)
51. Thank you, and I wish you good health.
Sat Oct 18, 2025, 09:40 AM
Oct 18

I can't go today. My spouse is going with a neighbor.

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