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Omaha Steve

(105,284 posts)
Sun Apr 20, 2025, 01:32 PM Sunday

I was diagnoised in 2013...


I have frontotemporal dementia: https://www.theaftd.org/what-is-ftd/disease-overview/

It is getting worse. I saw my doctor Friday. He decided it is time to take a driving test. That will be Thursday after noon.

https://www.theaftd.org/posts/uncategorized/driving-and-ftd/

I will check in with the results. Wish me luck.

OS

102 replies = new reply since forum marked as read
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I was diagnoised in 2013... (Original Post) Omaha Steve Sunday OP
I wish you the best Shellback Squid Sunday #1
Thank you for sharing and providing the link. You are a huge asset here at DU and to the Democratic Party. MLAA Sunday #59
I'm sorry to hear it is progressing, Omaha Steve. Truly. And I wish you all the luck I can find... hlthe2b Sunday #2
Oh man. Scary news. MontanaMama Sunday #3
Good luck in your driving test. magicarpet Sunday #4
thinking about giving up driving CountAllVotes Sunday #5
Be sure to NEVER use cruise control if pavement is damp or wet. Attilatheblond Sunday #50
Thanks for the advice CountAllVotes Sunday #73
Understand completely Attilatheblond Sunday #77
Best of luck to you! KT2000 Sunday #6
You have done remarkably well jmbar2 Sunday #7
golf cart. my family had one for a while. just a thought Tetrachloride Sunday #8
The family at the top of the hill uses one in the neighborhood, especially as the dad's health declined Hekate Sunday #53
I'm using Uber more often. Costco occasionally has Uber deals. I'll take an Uber to the train station, and AnotherMother4Peace Sunday #58
You are taking this well. 1WorldHope Sunday #9
Immanuel Rehabilitation Institute Omaha Steve Sunday #12
Well, good luck. That is a more thorough test compared to 15 min with the dmv tester. 1WorldHope Sunday #13
3 hours? Akakoji Sunday #36
I wondered this too. An in-depth assessment TommyT139 Sunday #80
I was about to say DFW Monday #94
You can't tell it from your posts. Good luck! 👍🍀 surfered Sunday #10
My Exact Sentiments DallasNE Sunday #23
Count me in on that comment too. I enjoy his valuable voice here. Nt lostnfound Sunday #75
thanks for the brief education on this OS peacebuzzard Sunday #11
That is a beautiful and heartfelt tale of your own. Thank you for sharing. erronis Sunday #21
thank you! it is a minor freak out of mine when I forget things, peacebuzzard Sunday #63
Praying you do well. My husband had to quit driving recently; I understand what a Ziggysmom Sunday #14
Wishing you the best of luck! jgo Sunday #15
Holding you in light and love, my friend. niyad Sunday #16
Keep checking because I swear I have heard recently that they have made strides in these Maraya1969 Sunday #17
Best wishes Omaha Steve. You got this 😍 Evolve Dammit Sunday #18
Good luck, OS gademocrat7 Sunday #19
Wishing you the best, Steve. As others here have already said, no one reading your posts would ever highplainsdem Sunday #20
Best of luck 🤞 I hope you will be ok 🙏 TommieMommy Sunday #22
You've got this, Steve! no_hypocrisy Sunday #24
I like this for a mantra. peacebuzzard Sunday #65
Oooooh, I like that too! calimary Monday #89
Good luck 🫂 benfranklin1776 Sunday #25
Best of luck Duncanpup Sunday #26
As someone above stated, you are a D.U. treasure. 3Hotdogs Sunday #27
I wish you luck. barbtries Sunday #28
Best of luck to you! SheltieLover Sunday #29
Omaha Steve, I'm sending you all the luck I can find, along with a lot of positive thoughts. Dem2theMax Sunday #30
Good luck and take care of yourself. multigraincracker Sunday #31
I really wish you the best. May the good angels of The Universe stay by your side. LoisB Sunday #32
For so many years BComplex Sunday #33
I wish you the very best Steve JMCKUSICK Sunday #34
I wish you love and luck.Omaha Steve. debm55 Sunday #35
You are surrounded by your DU family who know, love, and support you, OS. wordstroken Sunday #37
praying. Groundhawg Sunday #38
Good luck Steve! Emile Sunday #39
I wish you nothing but the best... Mad_Dem_X Sunday #40
Sending best wishes and best of luck by air mail expedited special delivery. Permanut Sunday #41
FTD. LizVerite Sunday #42
All the best Wild blueberry Sunday #43
Best of luck Steve! GoneOffShore Sunday #44
Good luck Figarosmom Sunday #45
Good luck! nt Shipwack Sunday #46
Driving tests are scary enough no matter one's age or health status. 3catwoman3 Sunday #47
I'm wishing you all the luck in the world, Steve! whathehell Sunday #48
Did you see the article about the link between liver function and.... bee_peaceful Sunday #49
Best of luck to you. beveeheart Sunday #51
sending you the best vibes I can stillcool Sunday #52
I hope you are still road-worthy, Steve True Dough Sunday #54
I wish you the best, amigo JoseBalow Sunday #55
Dear Omaha Steve ReRe Sunday #56
Hang in there, Steve! Good luck. Ocelot II Sunday #57
Steve, you're a DU gem. hamsterjill Sunday #60
Good luck Steve. boonecreek Sunday #61
Good luck !!!!! Karadeniz Sunday #62
You're our Act Blue fundraiser organizer here Niagara Sunday #64
I definitely wish you good luck and anything else that may help! liberalla Sunday #66
Good luck! (n/t) OldBaldy1701E Sunday #67
Wishing you the best and good luck, my friend. HeartsCanHope Sunday #68
Steve sent you DU mail BonnieJW Sunday #69
Much good luck Omaha Steve 🍀🍀🍀🍀 Clouds Passing Sunday #70
Hang tough. cachukis Sunday #71
I am sorry Omaha Steve. You've been a stalwart member of DU for almost 21 years. ------- Fla Dem Sunday #72
Phosphatidyl Serine might help - here is a link Nigrum Cattus Sunday #74
Research in England shows that Trazodone helps slow the advance Omaha Steve Sunday #76
Hoping that all goes well for you. love_katz Sunday #78
Thank you for sharing and providing the link. You are a huge asset here at DU and to the Democratic Party. MLAA Sunday #79
Good luck. elleng Sunday #81
OmahaSteve I'm sorry to hear this and I wish you much luck FakeNoose Sunday #82
Driver's Written. kgray96057 Sunday #83
Very tough. Best wishes Easterncedar Sunday #84
So sorry. applegrove Sunday #85
Good luck! Dorothy V Sunday #86
Been pulling for you for years, I will continue pulling. marble falls Sunday #87
I have faith that you will pass this! Stay present. Best to you! 58Sunliner Sunday #88
Our thoughts are with you. Grumpy Old Guy Monday #90
Good luck... BigmanPigman Monday #91
Good Luck! electric_blue68 Monday #92
Wishing you every success, Steve! Lots of those powerful DU vibes will see you through! Rhiannon12866 Monday #93
I am so sorry, Omaha Steve. Bumbles Monday #95
I too see my day coming Be The Light Monday #96
I spoke with a doctor in our now walking group malaise Monday #97
Wishing you all the best luck and results. Moostache Monday #98
Im so sorry. You must be so scared :( My husband had an MRI last week.. samnsara Monday #99
Best of luck Steve! Polybius Tuesday #100
I turned 68 in January Omaha Steve Tuesday #101
All the best to you Steve. JohnSJ Tuesday #102

MLAA

(19,128 posts)
59. Thank you for sharing and providing the link. You are a huge asset here at DU and to the Democratic Party.
Sun Apr 20, 2025, 04:48 PM
Sunday

I admire you and sending good vibes to you.

hlthe2b

(109,233 posts)
2. I'm sorry to hear it is progressing, Omaha Steve. Truly. And I wish you all the luck I can find...
Sun Apr 20, 2025, 01:34 PM
Sunday

THAT as well as all my hopes for advancements in FTD. You are a treasure and we all want to keep you around, sharp as ever, and active.

MontanaMama

(24,389 posts)
3. Oh man. Scary news.
Sun Apr 20, 2025, 01:37 PM
Sunday

I’ll be thinking about you this week and waiting to hear about your test.

CountAllVotes

(21,704 posts)
5. thinking about giving up driving
Sun Apr 20, 2025, 01:47 PM
Sunday

Numb feet, numb hands.

Need to use cruise control a lot.

If it comes to this, it will.

I've been able to drive for almost 55 years now and if it isn't safe to do so any longer, so be it.

Best of luck Steve!



Attilatheblond

(5,672 posts)
50. Be sure to NEVER use cruise control if pavement is damp or wet.
Sun Apr 20, 2025, 04:05 PM
Sunday

Less friction with the pavement means Cruise Control can think you're going slower than you are and it might speed up more than is safe. At least that is what a car guy told us and it makes some sense.

Hope you get to drive a while longer. I fear my time to hand over the keys is coming sooner than later, for similar reasons. Arthritis in spine making for poorer nerve impulses to arms and legs.

CountAllVotes

(21,704 posts)
73. Thanks for the advice
Sun Apr 20, 2025, 08:04 PM
Sunday

Typing is difficult now.

My medication is "no longer available" is the status.

I'm slowly going down. Sad.



Attilatheblond

(5,672 posts)
77. Understand completely
Sun Apr 20, 2025, 08:24 PM
Sunday

Hope we ALL have lovely memories to savor as our worlds shrink and options lessen

jmbar2

(6,810 posts)
7. You have done remarkably well
Sun Apr 20, 2025, 01:48 PM
Sunday

I would have never guessed from your posts that you were dealing with this. I am so sorry you are facing such a scary diagnosis. Peace be with you.

Hekate

(97,318 posts)
53. The family at the top of the hill uses one in the neighborhood, especially as the dad's health declined
Sun Apr 20, 2025, 04:10 PM
Sunday

AnotherMother4Peace

(4,726 posts)
58. I'm using Uber more often. Costco occasionally has Uber deals. I'll take an Uber to the train station, and
Sun Apr 20, 2025, 04:32 PM
Sunday

the train up the coast. It makes for less stress.

1WorldHope

(1,142 posts)
9. You are taking this well.
Sun Apr 20, 2025, 02:06 PM
Sunday

My husband would look for another doctor or just stop going to any doctor. I wish for your well being whatever the outcome. Who will test you? Is he sending you to the DMV or like Madonna?

Omaha Steve

(105,284 posts)
12. Immanuel Rehabilitation Institute
Sun Apr 20, 2025, 02:10 PM
Sunday

First there is a written test. IF I pass that, a driving test will follow. It takes about 3 hours.

1WorldHope

(1,142 posts)
13. Well, good luck. That is a more thorough test compared to 15 min with the dmv tester.
Sun Apr 20, 2025, 02:16 PM
Sunday

I'm pretty sure I could fail the written test on a good day. Good luck to you Steve!

TommyT139

(1,253 posts)
80. I wondered this too. An in-depth assessment
Sun Apr 20, 2025, 09:11 PM
Sunday

...allows for consideration of more factors in the driver's condition, skills, possible deficits, and other more tangential aspects (other chronic health conditions, vision, if any medications affect driving, etc).

A longer assessment can also help to provide the driver with any possible assistance -- there are evidently occupational therapists/driving coaches who may help fine-tune or suggest workarounds. They can also educate the driver and any family members about things to look out for over time that might suggest a change in ability.

I got most of this from an excellent general article on the topic:
https://drivingtoindependence.com/a-guide-to-driving-assessments-for-seniors-with-dementia/
And also a more technical summary of research -- I did some grad school in psych, so I tend to nerd out.
https://pmc.ncbi.nlm.nih.gov/articles/PMC10187703/

Omaha Steve, I too have benefited from your posts...and will continue to do so! Best of luck.

DFW

(57,785 posts)
94. I was about to say
Mon Apr 21, 2025, 10:25 AM
Monday

Granted, you have had a long time to get adjusted to this, but that begs the question whether it is possible to really get "adjested" to something that remains a moving target.

One of my best friends in Dallas has a B-I-L who gravely damaged his frontal lobes in a motorcycle accident when he was 20 (about 50 years ago), and whereas he is fully cognizant, he has little capacity for logic and no emotional stamina whatsoever. He flies off the handle if the shower water is off by 5 degrees in either direction, so obviously he hasn't been able to drive at all. Road rage gets you killed in Texas. If he sees a problem (the latest is black mold), if he decides it has been present in a car, he will never set foot in that car, whether or not there is any factual basis for this. My friend's wife is his twin sister, and she has been putting up with this as his unofficial caregiver for fifty years..

People can make light of this kind of affliction, but it is burden on both the caregivers and the victim, at least, as long as the victim is aware of the situation.

Kudos for your coping, no matter what the result this time. Far from everyone that travels this road does so as calmly.

DallasNE

(7,759 posts)
23. My Exact Sentiments
Sun Apr 20, 2025, 02:29 PM
Sunday

We have been blessed with Omaha Steve's frequent, cogent contributions over the last 12 years. I look forward to many more, and good luck with the driving test OS.

peacebuzzard

(5,451 posts)
11. thanks for the brief education on this OS
Sun Apr 20, 2025, 02:09 PM
Sunday

My family is down to 3 of us remaining siblings. We are all seniors, and from my end, both of my sisters have cognitive impairments (one is diagnosed as such and has been all of her life; the other sister is undiagnosed as far as mental, and it is my speculation alone. But she lives in a state that has legal and medical marijuana, and she is a daily patient because of aches and pains, so I know much of what I experience of her personality could be the use of medical MJ, and I don't judge her or have an opinion; it is her choice.
I have had recent trauma from a concussion and, most recently, a slip/fall that jarred my whole body. It was an accident that put me off work for a few weeks, so I have been on DU more than ever.
I am really sensitive to our situation because, as seniors, major decisions need to be made, and wills/documents should be in order so that it is not a mess for the survivors.
It is especially difficult because I am the only one lucid enough to realize these circumstances, and we don't have anything in place to protect the vulnerability that can occur at any time to any one of us.

I wonder at times if I suffer from the initial stages since it can come on slowly and progress.

You are a treasure I have always enjoyed your input and hard work on this site. Best wishes, OS, I look forward to reading your Thursday update.

erronis

(19,136 posts)
21. That is a beautiful and heartfelt tale of your own. Thank you for sharing.
Sun Apr 20, 2025, 02:28 PM
Sunday

Many/most of us have been or will be in similar situations. It's good to share our own experiences so others can be a bit more prepared.

peacebuzzard

(5,451 posts)
63. thank you! it is a minor freak out of mine when I forget things,
Sun Apr 20, 2025, 05:42 PM
Sunday

like walking into a room and forgetting why I went there.
But then I think I have been doing that for decades and especially after cocktail hour. ( I don't do that often, but I enjoy a Pilsner or organic cab at times)

Ziggysmom

(3,769 posts)
14. Praying you do well. My husband had to quit driving recently; I understand what a
Sun Apr 20, 2025, 02:17 PM
Sunday

loss of independence it can be. Safety of you and other drivers is #1 though.

Maraya1969

(23,240 posts)
17. Keep checking because I swear I have heard recently that they have made strides in these
Sun Apr 20, 2025, 02:21 PM
Sunday

diseases. In the meantime,:I'll be sending you white light and love.



highplainsdem

(55,503 posts)
20. Wishing you the best, Steve. As others here have already said, no one reading your posts would ever
Sun Apr 20, 2025, 02:26 PM
Sunday

imagine that you have FTD. I'm hoping that your doctor is just being extra cautious (a good thing for a doctor to be) and you'll pass both tests easily.

peacebuzzard

(5,451 posts)
65. I like this for a mantra.
Sun Apr 20, 2025, 05:51 PM
Sunday

I tend to rush too much. Always running everywhere,
I think slowing down and focusing more is good for most people at any stage.
less is more.

calimary

(85,955 posts)
89. Oooooh, I like that too!
Mon Apr 21, 2025, 01:12 AM
Monday

"Slow, steady, focused."

And you've got us, too, Steve. We're with you on this journey. Seems to me there are many valuable things to learn, in the process.

Dem2theMax

(10,654 posts)
30. Omaha Steve, I'm sending you all the luck I can find, along with a lot of positive thoughts.
Sun Apr 20, 2025, 02:53 PM
Sunday

I'm hoping for the best outcome possible for you. To me, you are one of the pillars of DU, and we need you here.

multigraincracker

(35,466 posts)
31. Good luck and take care of yourself.
Sun Apr 20, 2025, 03:00 PM
Sunday

I just hit my expiration date. I’m good with it. It’s all extra now.

BComplex

(9,383 posts)
33. For so many years
Sun Apr 20, 2025, 03:11 PM
Sunday

you have helped people on DU, through good times and bad, getting people on ballots, helping raise funds, just doing the good work of helping people stay sane through republican mismanagement of everything. You have to know that we love you and support you in everything you do.

Best of luck with your tests, my friend!

JMCKUSICK

(1,979 posts)
34. I wish you the very best Steve
Sun Apr 20, 2025, 03:12 PM
Sunday

I pray your transition is gentle and takes forever. You are far too important to us.
Thank you for all you do and the energy that you offer all of us.

wordstroken

(1,084 posts)
37. You are surrounded by your DU family who know, love, and support you, OS.
Sun Apr 20, 2025, 03:20 PM
Sunday

The thing that works best for me during challenging times ever since kidhood, is to truly believe that little voice inside my head that whispers, “I can do this!

And mostly that voice is right.

You got this, OS!

Wild blueberry

(7,586 posts)
43. All the best
Sun Apr 20, 2025, 03:41 PM
Sunday

You are a treasure, and all your DU friends are with you.
Come what may, you and your loved ones will figure it out.
Big hug!

3catwoman3

(26,543 posts)
47. Driving tests are scary enough no matter one's age or health status.
Sun Apr 20, 2025, 03:48 PM
Sunday

Wishing you strength and serenity and good luck.

bee_peaceful

(75 posts)
49. Did you see the article about the link between liver function and....
Sun Apr 20, 2025, 03:57 PM
Sunday

brain function.

Sending you all the best my friend.

True Dough

(22,759 posts)
54. I hope you are still road-worthy, Steve
Sun Apr 20, 2025, 04:13 PM
Sunday

and if not, I hope there's a viable option to help get you around whenever you need it.

All the best to you, and thanks for all the fundraising you promote around these parts!

hamsterjill

(15,764 posts)
60. Steve, you're a DU gem.
Sun Apr 20, 2025, 04:50 PM
Sunday

Wishing you the best of luck with this. I admire your courage and acceptance, and I always want good outcomes for good people!

Niagara

(10,515 posts)
64. You're our Act Blue fundraiser organizer here
Sun Apr 20, 2025, 05:48 PM
Sunday

You keep track of everything and you do a great damn job of it too!

I don't know how you do it, OS. I'm not sure if I'm that organized to keep track of it all.

I admire you for doing this selfless act for us, so thank you for all that you do.

I'm sending you the best of luck as always, OS.



liberalla

(10,428 posts)
66. I definitely wish you good luck and anything else that may help!
Sun Apr 20, 2025, 05:52 PM
Sunday

Get a good night's sleep. Do some stretches to loosen the muscles and relieve some tension. Deep breaths... Imagine or "see" in your mind a pleasant drive on a beautiful day and a positive result on your driving test. I wish this for you!

Fla Dem

(26,538 posts)
72. I am sorry Omaha Steve. You've been a stalwart member of DU for almost 21 years. -------
Sun Apr 20, 2025, 07:14 PM
Sunday

May you continue for many more years.

Omaha Steve

(105,284 posts)
76. Research in England shows that Trazodone helps slow the advance
Sun Apr 20, 2025, 08:21 PM
Sunday

I've been on that a couple of years now. Thanks for the tip.

OS

MLAA

(19,128 posts)
79. Thank you for sharing and providing the link. You are a huge asset here at DU and to the Democratic Party.
Sun Apr 20, 2025, 08:53 PM
Sunday

Sending healing vibes your way. I admire you.

I accidentally replied to another’s reply earlier.

elleng

(139,216 posts)
81. Good luck.
Sun Apr 20, 2025, 09:38 PM
Sunday

Dad was smart enough to stop driving, and give me his car; I was thankful for both.

FakeNoose

(37,192 posts)
82. OmahaSteve I'm sorry to hear this and I wish you much luck
Sun Apr 20, 2025, 09:44 PM
Sunday

FTD is something that runs in my family also. For us it's a genetic inheritance from our mother, and her father, and we're not sure how far back it goes. It's lucky to be living now because new research is being done on FTD like never before. We're hoping and praying for a breakthrough. Good luck, dear Steve.

kgray96057

(29 posts)
83. Driver's Written.
Sun Apr 20, 2025, 10:04 PM
Sunday

The DMV has a practice test online. The practice test is drawn from the bank of questions asked for the actual test. I set it for 99 questions and ran it for 2 weeks, daily, until I felt confident. They ask far fewer questions on the actual test. By the time I took it, they were all old friends.

BigmanPigman

(52,893 posts)
91. Good luck...
Mon Apr 21, 2025, 02:26 AM
Monday

I am rapidly getting dementia. Simple words and simple math have become more difficult within the past year. My Prim Care Doctor wasn't alarmed but I can tell there is definitely a big change.

I tried to find out how to renew my Dr License last week and after 2 1/2 hours on the useless DMV web site I gave up on trying to figure out why they would not let me make an appointment. Finally I went to Reddit for some decent info. It seems that you can renew it on line only 2 consecutive times in CA. Why doesn't their web site say that?!?!?!?

Then, to make "an appointment" there is more confusion (naturally). I have no idea what to do and I live only 2 blocks from the DMV. I "think" you have to go in to the DMV with some secret code on your phone and once you get into the DMV you show someone/something your cell phone secret code and that is supposed to be your "appointment". It sounds bogus. I assume that I will have to stand in line for 2 hours just to be told that it is incorrect and I need to stand in at least one more line. Since I literally live a 5 minute walk away it would be easier to wait at home and walk over once my "secret appointment number" at my appointment time. Since this is the CA DMV they do NOT make sense at all and love to torture people. The DMV are sadists!

I hope your local DMV is run better than mine. I have to get a new photo and eye test. This will take an entire day since the DMV lines are literally around the block and have been since 1988 when I moved here.

Bumbles

(370 posts)
95. I am so sorry, Omaha Steve.
Mon Apr 21, 2025, 10:25 AM
Monday

My former husband had the same diagnosis. It is a difficult condition to deal with. You seem to have had many good years since your diagnosis. My ex learned at 76 and deteriorated quickly. I wish you the best in dealing with it.

Be The Light

(90 posts)
96. I too see my day coming
Mon Apr 21, 2025, 11:09 AM
Monday

when they will take my car away. I'm 69 and been driving since 16.

So I'm rooting for you man! Just remember, most driving is like riding a bike.

Hard wired. Keep me updated!

malaise

(283,219 posts)
97. I spoke with a doctor in our now walking group
Mon Apr 21, 2025, 12:16 PM
Monday

and had her take a good friend off the road. He was a danger to himself and others.
All the best but sometimes we have to police ourselves.

samnsara

(18,482 posts)
99. Im so sorry. You must be so scared :( My husband had an MRI last week..
Mon Apr 21, 2025, 02:38 PM
Monday

..his brother and dad passed of a brain tumor. No news yet.

Please take care.

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